Access Culture Tumblr Blog

Interested in more Access Culture writings, art, & non-linear expression? Check out my Tumblr page: llyubov.tumblr.com.

Please also donate to my survival work if you can via the virtual tip jar here on the very front page–or via the Tumblr page!

Keep writing. raging. and creating.

Gratitude & ❤

Posted in Uncategorized | Tagged , , , , , , , , , | Leave a comment

Donate Button

Image | Posted on by | Leave a comment

A Statement in Honor of Bed Revolutionaries: Posted for May Day/International Worker’s Day, 2014

Love to the bed revolutionaries today. To people whose communication and connection go unnoticed or dismissed— To people who do not have access to academic terms—To people who have to use the words or gestures to get by, but it’s still unfamiliar. To folks whose ideas, whose beings are left behind. To people who are left out isolated. To folks making well below poverty wages—if that. To folks who do not have social access or “social capital.” To the rowdy, fierce and ‘difficult’ ones—to the quiet and shy ones—To the outcasts of the outcasts. To survivors. To crazy folks whose realities are usually discounted. To folks who are complex, multilayered, contradictory. To folks who are multiply marginalized. To people who don’t give two shits about “cool” and know the appropriative harm of it. For folks whose families and selves have chemical injuries due to environmental racism and classism. To people whose very existence is revolutionary. This is for you today & everyday. 

*A redefinition of “work” “value” and “contribution” is much needed.*

*~Inherently valuable. Inherently worthy. Inherently bad-ass~*

 
Posted in Uncategorized | Tagged , , , , , | Leave a comment

Problems With High Functioning/Low Functioning Labels: In Honor of Autism Acceptance Month.

#AutismAcceptanceMonth

High Functioning/Low Functioning labels serve no purpose but to incorrectly categorize people based on assumptions and stereotypes of “functionality.” “High Functioning” to me is not a compliment. It means that people are making incorrect assumptions about my abilities, strengths and challenges based on stereotypes. “High Functioning” erases struggles and therefore conveniently dismisses inquiries for assistance.

Similarly, “Low Functioning” erases one’s strengths and highlights one’s struggles therefore dismissing a person’s contributions and gifts.

But one cannot critique the whole “High Functioning/Low Functioning” mess without critiquing constructions of “functionality.” What do we mean by “functioning?” anyway? Haven’t all of our ideas of “functioning” been constructed by narrow definitions of “work” and “contribution” put in place by a multiply oppressive capitalist society?

So lets throw out the “functioning” assumptions and questions.

People aren’t machines whose bodies/minds/spirits exist to “function” in some pre-mandated way. In the end, It’s about how we want to connect on a human level.

Posted in Uncategorized | Tagged | Leave a comment

Autism is Not a Disease—A Poem

Autism is not a disease
Fill you with dis-ease our real, bodies aching
like yours
no longer an “other”
can’t turn your back when we’re your friends, your family, your lover.
Autism is me
Rejecting years of shame
Piled on like weights too heavy to see past your shame
Your blame is not me
Your fear is not me
I rise above your insult
Fire bird in full flight
And when….and when you finally see us human
You’ll have to look at yourself, your fear, your insecurity
Autism is not a disease
Your hate doesn’t touch, cannot damage
This body finally set free

Posted in Uncategorized | Leave a comment

Disability & the Constant Threat of Isolation–Community Accountability–How you may Knowingly & Unknowlingly be Contributing to the Exclusion & Isolation of Disabled People.

 

 –As Disabled and Chronically Ill people, we experience extreme social isolation.  If we are not isolated in prisons or institutions, we are isolated in our own homes.  Having a Disability means knowing the threat or reality of complete isolation is always present.  It is a lingering fear, a constant re-traumatizing ever-triggering fact of life that we have all been taught to swallow so well.  We’ve been taught that being alone is just another fact—a “consequence” of being poor, disabled—a punishment for being oppressed.

   — As we know, isolation has been used and is still used in both the prison and medical industrial complexes as forms of corporal punishment.  All human beings need a certain amount of human connection.  Without it, one’s health is worsened, depression and anxiety become more intense, and a sense of utter hopelessness kicks in.  In other words–a certain amount of social interaction, & physical touch (for some) is necessary for survival.  When told that you cannot or should not have your basic needs met for an extended period of time, it is easy to internalize these messages—to actually believe that you do not deserve to live.  People who are oppressed and express thoughts of self-destruction are usually met with disdain and fear.  Often behaviors that appear scary or intense are the result of long-term oppression.  What we need is compassion and acknowledgement of the ways in which we have been oppressed, not further pathologization, shunning and fear. 

 

The Community’s Role in Fighting Isolation/Exclusion of Marginalized Groups:

–Inaccessibility is a big reason that folks are excluded from social events.  Many people just think about physical accessibility but there are many more important factors to include.  People with chemical sensitivities need fragrance-free and scent-free spaces.  People with sensory sensitivities need sensory-friendly environments. For more info, check out:  http://vanessahuang.com/fragrance-free/ , http://timetolisten.blogspot.com/2012/01/youre-disabled-demand-access-gtfo.html,  & fuckyeahtriggerwarnings.tumblr.com (to name a few).

–Changing Attitudinal biases/beliefs:  Many neurodiverse folks (including Autistic folks or folks labeled with psychiatric diagnoses) have been criminalized and excluded from events due to misconceptions, bias, and fear.  In order to create lasting, deep change we must look at how our own attitudes and actions lead to exclusion of marginalized folks.  We must understand how exclusion/isolation is a form of systemic oppression/abuse and make sure we are not complicit in maintaining these systems. How can we do this? On-site peer counselors, sensory-friendly chill spaces, non-judgmental, inclusive spaces with folks who do not assume that just because someone does not share their reality, doesn’t mean it’s less real.

–Assumptions about class-background/access to resources:  Living in a very class-privileged city, this is very apparent to me.  A lot of events cost money—20 bucks may not be a lot to someone who has employment-privilege but it is a lot for those of us surviving on social security or welfare.  The most marginalized folks are usually excluded from community events because they cost too much and this excludes/isolates Poor folks.  How can we accomplish this? Sliding-scale or pay-what-you-can events, free rides or accessible car-shares.  Offer rides to the most isolated folks in your communities, offer rides to the unpopular folks, the excluded folks, the nerds, the weirdos, the outcasts.  Lets undo the oppressive popularity game.

Posted in Uncategorized | 2 Comments

How to Survive Heartbreak

Let the sea salt of your tears wash over you like holy water
your body cries out in pain of the memory of sacred lover’s embrace
Let your own hands replace theirs, and they will create new images with paint-brush fingers on the surface of your skin

Reject the shame of not-knowing of not-doing, let the raw ugly roar of your humanness be messy and free
Know that love is not lost, it is not gone–it is a constant force–coursing through your veins–fire fuel for stars–illuminating the cosmos
Love your heart–let it break open again and again–it is a powerful instrument–it will be filled with even more love next time
Let your hands in prayer position seek wisdom from the sky, from the universe, from angels and ancestors–you will be surrounded by this deep understanding, and endless soothing
Know that you are not alone–you are god-like beauty seeking truth–learning from mistakes

Scream and cry until you know your true voice
You were never shame, your heart has gold-wings
Let this divine truth embrace you and lead you home

Posted in Uncategorized | Leave a comment